COVID-19 international impact research
The current COVID-19 pandemic is impacting on us all. SUDEP Action aims to better understand the impact this is having on people with epilepsy and their families, on health professionals and on bereaved families across the world.
As part of a new research programme, SUDEP Action is working with researchers at the University of Oxford and Newcastle University in the UK, and international expert collaborators to gather and analyse information via three key surveys.
The information gathered will help a better understanding of the challenges people with epilepsy, their families, people who are bereaved by epilepsy-related death and health professionals are facing, due to the COVID-19 pandemic and also more generally. This will inform our future work, so we can continue to help those who need it, support those who have been bereaved and do all we can to save lives now.
We invite YOU to take part in one, or more, of the surveys.
YOU can take part if you:
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Are over 18
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Have epilepsy, or
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Care for a person with epilepsy, or
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Are a healthcare professional who helps in the management of people with epilepsy, or
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Are bereaved by epilepsy-related death, whether it happened recently or a long time ago
People from all countries are invited to take part.
The power of research increases with every person who takes part.
For more information, visit - https://sudep.org/covid-19-impact-research
WELCOME TO THE GLOBAL CONVERSATION, EDITION 3!!
A knowledge repository of sudden death in epilepsy, brought to you by SUDEP Action UK and SUDEP Aware Canada,
together with health professionals, families & advocacy organisations from around the world.
NEW to the Global Conversation
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Judicial reports on avoidable deaths. Hanna J, UK & Wannamaker BB, UK UPDATED Article [July 2019]
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Current evidence for a role of serotonin in SUDEP. Gordon Buchanan & George Richerson, USA UPDATED Article [December 2018]
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Overview of section: current research on causes of SUDEP. Frida Teran, Cory Massey & George Richerson, USA UPDATED Article [October 2018]
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Sleep, night and SUDEP. Gordon Buchanan, Rui Li, Alexandra Petrucci & Benton Purnell, UK NEW Article [July 2018]
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SUDEP and legal issues. Braxton Wannamaker, USA & Jane Hanna, UK REVIEWED Article [May 2018]
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Implications for clinical practice – SUDEP in adults with an intellectual disability. Mike Kerr, UK REVIEWED Article [April 2018]
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SUDEP legislative initiatives in the US: two case studies. Thomas F Stanton & Mark J Stevenson, USA REVIEWED Article [April 2018]
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Registries for SUDEP research. Elizabeth J Donner, Canada & Orrin Devinsky, USA REVIEWED Article [April 2018]
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The adenosine hypothesis of SUDEP. Detlev Boison & Hai-Ying Shen, USA REVIEWED Article [April 2018]