Nikey

Nikey

Nik started having seizures two days before her seventh birthday. For eight years she went through twenty four medications, or combinations of medication, but nothing worked ...

Rylee

Rylee

October 2, 2007 we awoke to find that our two and a half year old son, Rylee, had passed away in the middle of the night. We called 911...

Kimberly

Kimberly

Kimberly was born on September 13, 1989 and passed away on May 11, 2015. She grew up in Massachusetts and ...

Benjamin

Benjamin

Benjamin était un petit garçon épileptique traité par Dépakine depuis environs 3 ans. Il a fait 5 crises d'épilepsie dont la 4ème était très profonde et la 5ème mortelle. Il nous a quitté à 5 ans et demi...

Kirsty

Kirsty

Kirsty was one of a pair. She has an identical twin sister - a mirror twin - a wonderful constant reminder. Kirsty’s first episode of epilepsy was at the age of 18...

Sophie

Sophie

Sophie was born a very healthy, happy little girl. She had her first tonic-clonic seizure when she was 6 months old and it lasted 45 minutes...

Ravin

Ravin

On the 12th February 2011, at approximately 6:00pm, our brother Ravin J Dattani sadly passed away. He was 29 years old...

Jordan

Jordan

Our precious Jordan, age 15, lived a short but very fulfilling life. In her resume, she describes herself as, “an enthusiastic, responsible and eager person who loves sports and taking on new challenges.”...

Tyler

Tyler

Our son Tyler passed away on January 23rd 2011, from a seizure in his sleep, at the young age of 20. A sophomore at university, his death occurred on a Friday night and he lay in his bed face down for almost 48 hours in his college dorm...

Kim

Kim

Kim was 23 years old and was studying for her nursing degree ...had her first and only seizure on Easter Sunday, 2006 ...morning of October 7, 2006 we discovered Kim in the bedroom face down, not moving...

Henry

Henry

My son, Henry, was a beautiful, happy and healthy little boy. As a 3-year old he suffered from a few febrile seizures. His medical evaluation for these seizures revealed nothing and we soon learned that they are not uncommon in childhood...

Katherine

Katherine

Katherine was thirty one years old when she died of SUDEP on November 13th, 2011. My introduction to SUDEP was short and shocking...

Christopher

Christopher

It was late in the afternoon on February 21, 2002 when the phone rang in my office. I picked up the receiver and my daughter, Lauren, was screaming...

Kate

Kate

January 16, 2006 is the day that changed our family forever. It was the day we lost our vibrant, caring and precious, nineteen year old, only daughter Kate, and the loving sister of our three sons...

Peter

Peter

Peter had his first epileptic seizure at the age of 14... At no stage were we told that the likelihood of an early death was increased with epilepsy...

Eric

Eric

At 5am, on March 28, 2006, my wife and I woke to a loud crash. Running to our 16 year old son’s room we found him on the floor, wedged between his bed and the nightstand, his lips blue and teeth clenched...

Jane

Jane

I am lying on her bed thinking of what we could have done to prevent her death. She was 19 years old...

William

William

People do not die from epilepsy. That is what we were told when William died as a result of a seizure in 1988... [ENG/FR]

Erin

Erin

I could talk all day about Erin, telling you how beautiful, clever, kind, caring, popular, fun loving, annoying and special she was. She was due to leave home for university when she was diagnosed...

Matthew

Matthew

Our son Matthew died in his sleep at the age of 26 from SUDEP.

Eve

Eve

Eve, the youngest of our two daughters, died aged 21 in 2005 whilst studying Radio & TV Production at Staffordshire University. We thought she had her whole life ahead of her...

John

John

John developed epilepsy at the age of 11 years. He had many attacks, suffering injuries and burns. We live in rural Kenya where epilepsy is highly stigmatised...

Becky

Becky

On a wet spring morning in May 2004, just three months short of her twelfth birthday, Becky became a victim of SUDEP... [ENG/SP]

Stephen

Stephen

My whole world changed with one phone call in August 2010. My eldest son, Stephen, had died suddenly. The sheer disbelief, shock and bewilderment was powerfully overwhelming. How could that be? He was a fit, healthy 38 year old guy with no cares in the world...

Karen

Karen

Karen was 10 when she suffered her first epileptic seizure and it was shortly after that she was diagnosed with generalized epilepsy. On 7 September 2008, I received a call that no parent could imagine or should receive...

Chris

Chris

As Chris approached his 20th birthday he was diagnosed with partial complex seizures....It felt like Chris did not have epilepsy....On September 12th, 2012, our world changed forever... [ENG/FR]

Ebony

Ebony

Ebony, or Ebz as she was known to her friends, passed away in her bedroom on Sunday, 16th May 2010 - three weeks after we celebrated her 21st birthday. We never suspected that Ebony could be having seizures...

Kristen

Kristen

My daughter Kristen was diagnosed with epilepsy when she was nearly 15 years old. For ten years her epilepsy had been fairly well controlled with medication... That changed when she became pregnant...

Cameron

Cameron

At 21, Cameron O’Brien was a young man with the world at his feet - until that fateful day in July 2012 ... Cameron had only ever had two seizures during sleep, some eleven months earlier...

Celene

Celene

Case No 3251/2003 was our daughter, Lieutenant Celene Harris BSc (Hons), RAN, aged 31, a beautiful, vivacious, loving and generous young woman...

David

David

As David had a history of epilepsy, my parents and I imagined he had fallen during a seizure and hit his head, drowning in the running water. We had no idea that epilepsy can kill directly... [ENG/SP]

Dianne

Dianne

Despite being reassured by her doctors that epilepsy in itself was not life threatening, Dianne died in her sleep suddenly and unexpectedly in March 1989, aged 32...

Paul

Paul

Paul died on April 18th 2007 at the age of 43 years. He left a devastated mother, siblings and nieces and nephews, all trying to make sense of how an apparently healthy man could die so suddenly and unexpectedly...

Abbey

Abbey

Had I known that death was a possibility, how would I have handled things with Abbey? ... Would I have wanted her to live her life any more inhibited than she did already?...

Colette

Colette

Colette suffered only 4-6 seizures a year, always on awakening. She took a small amount of medication ... was a strong, healthy and happy young girl. Yet in April 1998, Colette died in her sleep, aged 17...

Joseph

Joseph

On the morning of May 29th 2013, I went into Joseph’s room ... I knew something was very wrong, then I realized my beautiful baby boy was gone. We deserved to know SUDEP existed...

Jack

Jack

Jack was an only child. He died on 23 December 2010, aged 20 ... he took his medication regularly and didn’t let it affect his life ... were told that epilepsy was not life threatening, so there was no need to worry...

Karen

Karen

Karen was born in April 1975 and died in February 2012 ...an interim cause of death was given as bronchopneumonia, yet we felt this couldn’t be right; everything pointed to epilepsy. Although we had heard of SUDEP, we didn’t think it would happen to Karen as she was always so well...

Alpana

Alpana

Alpana was 43 years old when she died... We were shocked and speechless as to how could this happen without any warning...

Christopher

Christopher

Christopher was a long awaited treasure for us, as he came later in our lives. From a toddler onwards, he was a man of his own mind. He was always full of hope and loved life ...

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